World Neurofibromatosis Day 2018 is on Thursday, May 17, 2018: does anyone have neurofibromatosis?

Thursday, May 17, 2018 is World Neurofibromatosis Day 2018. What's Neurofibromatosis NF Information, Education, Research Sign Up Today To Learn More.

does anyone have neurofibromatosis?

Neurofibromatosis causes unchecked growth of tissue along the nerves. This can put pressure on affected nerves and cause pain, severe nerve damage, and loss of function in the area served by the nerve. Problems with sensation or movement can occur, depending on the nerves affected.

The condition can be very different from person to person, even among people in the same family who have the NF1 gene.

The "coffee-with-milk" (café-au-lait) spots are the hallmark symptom of neurofibromatosis. Although many healthy people have 1 or 2 small café-au-lait spots, adults with 6 or more spots greater than 1.5 cm in diameter are likely to have neurofibromatosis. In most people with the condition, these spots may be the only symptom.

Other symptoms may include:

Blindness

Convulsions

Freckles in the underarm or groin

Large, soft tumors called plexiform neurofibromas, which may have a dark color and may spread under the surface of the skin

Pain (from affected peripheral nerves)

Small, rubbery tumors of the skin called nodular neurofibromas

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The symptoms cited---------an offshoot of blocked energy + accumulated toxins in Thyroid & Parathyroid, lymphatic system, Spleen, hormonal imbalance with a displaced solar plexus.

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TARGET THERAPY* It is the God-given therapy communicated to the mankind through THE RIGVEDA, one of the Hindu scriptures.

Target Therapy---Acupressure Techniques & Indian Natural Remedies, [comprising Ayurveda, Homeopathy, Bio-chemic salts, Herbal Remedies, Yoga/Meditation, Magneto-therapy, Sidha, etc.,] U can have sizable & perceivable relief in 45-90 days. @ no/affordable costs, No side effects, and No Hospitalization.

Dr.Vora designed it in such a way that the costs are the least for the survival/rescue of common man and the poor in villages, towns and metropolis on the globe; with NO insurance cover. It is most suitable to all the youngsters on this entire globe.

U may study it, discuss with Ur family members/friends/acquaintances and slowly and steadily implement it for the best results.

•No side effects and no risk. If it clicks, mostly possible, U shall have a cure. Lest, the therapy keep mum. No extra risk. It is the most suitable line of treatment even for the terminally ill patients. Cancer cure/prevention is quite possible. U may try it for any incurable disease including cancer of any organ[s], post-surgical recurrence of tumors, Leukemia, HIV/AIDS, Crohn’s Syndrome, Gilbert’s Syndrome, colon cancer, Thalassemia, Muscular Dystrophy, Autism, bone TB., Tinnitus, all brain & spinal cord disorders, CLL, Crohn’s Syndrome, endometriosis, etc., ---it should aim @ [3] steps.

1. Removal of toxins from all internal organs & purging through Normal Drainage systems, feces, urine, menses [females], skin, lungs.

• 2. Activating all the internal organs to make each & every organ to function up to optimum levels.

3. Supplying vitamins, nutrients, micro-nutrients, minerals, trace elements for invigorating the entire Immune system to produce antibodies.

PS. If satisfied/benefited with, inform others to browse 'Yahoo Answers’ on any health issue.

Source: ‘HEALTH IN UR HANDS’ [Vol.I & II] available in all Indian Languages all over the globe] by Dr.Devendra Vora, DSc.,MD.,FRCP.,---an octogenarian & the pioneer in Acupressure in India.

Dr.Vora, the world renowned Acupressurist, an octogenarian and the Bhishma Pithamaha of acupressure in India--- treated and caused to treat more than 150000 cases of Cancer, HIV/AIDS, Diabetes, irregular menses and also many other most dreaded diseases.

Amazon Gold Box

Will neurofibromatosis have a cure someday?

Will neurofibromatosis have a cure someday?

Cause: The endocrine glands produce hormones to regulate human traits, namely, Kama [desire], Krodha[anger], Lobha[Selfishness and greed]Moha[[love], Mada[lust] and matsaryas[affections]. Hormonal Imbalance is the root cause of all the chronic and dreaded & incurable diseases/syndromes or it may also be congenital due to genetic predispositions + bad diet.

The symptoms cited---------an offshoot of blocked energy + accumulated toxins in Brain, Spinal cord, heart, liver, throat, larynx, pharynx, lungs, Thyroid & Parathyroid, lymphatic system, Kidneys, Spleen, gonads, hormonal imbalance with a displaced solar plexus.

Any Dreaded/Incurable Disease/Syndrome including Cancer Cure @ any stage, worth trying:

Target Therapy* is worth trying. It is the God-given therapy communicated to the mankind through THE RIGVEDA, one of the Hindu scriptures. Dr.Vora[late], the world renowned Acupressurist and the Bhishma Pithamaha of acupressure in India--- treated and caused to treat more than 2,00,000 cases of Cancer, HIV/AIDS, Diabetes, irregular menses, brain & spinal cord affected disorders and also many other most dreaded diseases.

Target Therapy* with the aid of Acupressure Techniques & Indian Natural Remedies, comprising Ayurveda-[ Using Patented Ayurveda Food & Nutrition Supplements manufactured India and USA, approved by USFDA, in KOSHER, HALAL, GMP, ISO ETC., and made available at Stores in your vicinity in 40 countries all over the globe. No Side Effects.] Homeopathy, Biochemic salts, Herbal Remedies, Yoga/Meditation, Magneto-therapy, Sidha, etc., U can have sizable & perceivable cure/relief in 45-90 days. @ no/affordable costs, No side effects, and No Hospitalization.

U may try it for any incurable disease including cancer of any organ[s], post-surgical recurrence of tumors, Leukemia, meurofibromatosis, ADD/ADHD,Lymphoma, HIV/AIDS, Crohn’s Syndrome, Gilbert’s Syndrome, IBS, colon cancer, Thalassemia, Alzheimer’s Syndrome, Parkinson’s Syndrome, Muscular Dystrophy, Autism, bone TB., Tinnitus, all brain & spinal cord disorders, CLL, Crohn’s Syndrome, endometriosis, etc.,

Dr.Vora designed it in such a way that the costs are the least for the survival/rescue of common man and the gullible poor in hamlets, villages, towns and metropolis on the globe; with NO insurance cover & NO money to bear the costs of chemo. It is most suitable to all the youngsters on this entire globe.

U may study it, discuss with Ur family members/friends/acquaintances and slowly and steadily implement it for the best results.

•No side effects and no risk. If it clicks, mostly possible, U shall have a cure. Lest, the therapy keeps mum. No extra risk. It is the most suitable line of treatment even for the terminally ill patients. Cancer cure/prevention is quite possible. U may try it for any incurable disease including cancer of any organ[s], post-surgical recurrence of tumors, Leukemia, ADD/ADHD, HIV/AIDS, Crohn’s Syndrome, Gilbert’s Syndrome, colon cancer, Thalassemia, Alzheimer’s Syndrome, Muscular Dystrophy, Autism, bone TB., Tinnitus, all brain & spinal cord disorders, CLL, Crohn’s Syndrome, endometriosis, etc., ---it should aim @ [3] steps.

1. Removal of toxins from all internal organs & purging through Normal Drainage systems, feces, urine, skin, lungs, menses [females].

2. Activating all the internal organs to make each & every organ to function up to optimum levels, by purging out toxins.

3. Supplying vitamins, nutrients, micro-nutrients, minerals, trace elements for invigorating the entire Immune system to produce antibodies.

All items for a cure—available in Ur vicinity all over the globe.

My son had 2 seizures and has cafe au lait spots...could this be Neurofibromatosis?

My son had 2 seizures and has cafe au lait spots...could this be Neurofibromatosis?

From

"Having one to three café-au-lait spots is quite common, present in as many as one in five healthy children. Each spot of significant size after the first three, though, is increasingly uncommon and increasingly likely to be associated with NF or with one of the other neurocutaneous syndromes, including neurofibromatosis type 2, segmental neurofibromatosis, tuberous sclerosis, McCune Albright syndrome, Fanconi anemia, Bloom syndrome and ataxia telangiectasia (CMAJ, Aug 2002; 167:3.).

Neurofibromatosis is diagnosed not with a test but by the presence of certain physical findings.

People can receive a firm diagnosis of NF Type 1 if they have any two of the following symptoms (Textbook of Pediatrics, WB Saunders, 2000):

* At least six café-au-lait spots more than 5 mm in the greatest diameter (before puberty) or at least six café-au-lait spots of more than 15 mm (after puberty).

* Underarm or groin freckling (called axillary or inguinal freckling).

* Two or more Lisch nodules (small nodules in the iris of the eye).

* Two or more neurofibromas (rubbery lumps under the skin, often slightly purplish over the lump –these usually don't show up before puberty) or one plexiform neurofriboma (thickened nerve trunks, often on the face – these are usually apparent at birth).

* A bone lesion consistent with NF, such as thinning of the long bones.

* Optic gliomas (small benign tumors of the optic nerve--most still have normal or near-normal vision).

* A close relative with NF (parent, sibling, or child).

Many of these findings do not show up in early childhood. Thus, any child with six or more café-au-lait spots that are more than 5 mm in diameter should be monitored and treated as having NF. This means a baseline examination by an ophthalmologist and audiologist (including vision and hearing tests) and a visit with a geneticist. It also means considering a baseline EEG and head CT or MRI, as well as a skeletal survey radiograph."

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Also -

And a good Mayo Clinic review

I did part of my medical training at the Mayo Clinic. They are world renowned.

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In Neurofibromatosis, the tumors are benign, but waiting a month for an MRI scan of the brain seems a bit long for the United States. That would be fast for Canadian medicine. Your doctors should be aware of your understandable anxiety and request an earlier MRI scan appointment.

In my 20 years as a cancer doctor, none of my patients ever waited a month for any kind of scan.

Agoda
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