Congenital Heart Defect Awareness Week on February, 2019: Premature babies and heart defect?
Congenital Heart Defect Awareness Week 2019. Congenital Heart Disease If your child has a heart defect we offer support and hope. Learn more.
this week 2/7 to 2/14 is Congenital Heart Defect Awareness week...so there is alot of information out there right now, which is awesome. my son was born full term and has hypoplastic left heart syndrome. he has already had 2 of the 3 surgerys he will need to correct his heart enough for survival. they can not even give an estimated time span for his life as all the treatments for congenital heart defects are still pretty new. the oldest person with his condition that has been repaired is now 19, so that is amazing to me.
i believe your statistics are correct. heart defects kill more babies then all cancers together.
yes i think your statistics include children with corrected hearts.
thanks for putting this info out there.
Finding out the statistics of congenital heart defects & follow up surgery.?
HI there! Congrats on the upcoming birth of the little one!
My middle son, 7 1/2 years old, has HLHS, and I am the co-owner of The HOPE FOR CHILDREN WITH HLHS Group: www.hopeforhlhs.com
I do research every week to keep up on new information, if any, both for myself as a HLHS mom, and for my group. I have never seen anything published which discussed how many parents chose termination over treatment. I do know that approx. 1 in 100 babies are born with Congenital Heart Disease every year, and approx. 1%-4% of those have HLHS.
I note you are researching for the UK, but as a similarly industrialized nation, the stats are probably also similar to the US. I will research for the UK, I have some sources, but here are the stats for the US in the meantime:
This is from the American Heart Association:
Congenital Cardiovascular Defects: Statistics
3,861 people in the United States died from cardiovascular defects in 2004. At least 15 types of cardiovascular defects are recognized, with many additional anatomic variations.
Thousands of babies are born each year with cardiovascular defects. Of these,
4–10 percent have atrioventricular septal defects.
8–11 percent have coarctation of the aorta.
9–14 percent have tetralogy of Fallot.
10–11 percent have transposition of the great arteries.
14–16 percent have ventricular (ven-TRIK'u-ler) septal defects.
4–8 percent have hypoplastic left heart syndrome.
About 650,000 to 1,300,000 people in the United States with cardiovascular defects are alive today.
2004 death rates per 100,000 people for congenital cardiovascular defects were 1.4 for white males, 1.8 for black males, 1.2 for white females and 1.4 for black females.
Crude infant death rates (under 1 year) are 38.3 per 100,000 white infants and 56.0 per 100,000 black infants.
From 1994 to 2004 death rates for congenital cardiovascular defects declined 31.6 percent, while the actual number of deaths declined 25.4 percent.
I hope that helps, and my thoughts and prayers are with you, your daughter and your grandbaby!!!
Hope for Children with HLHS Group
PS: I just found this. I think this may be what you are looking for:
How can I contribute?( I am serious)?
Congenital Heart Defect Week is Feb 7-14th. National CHD Day is Feb. 14th. You could do something for that. It doesn't always have to be money that is contributed. You could spread awareness just as easy. CHD research is grossly underfunded yet is the #1 Killer of our children. The facts about CHDs are chilling and the research money facts are even more chillin. You can visit this website for more information.
or you can go directly to the fact site
or my myspace site is